Privacy and Health-Care Data
The Australian Privacy Foundation recognises that electronic
records carefully designed to support clinicians can assist with health care.
These record systems need to enable health professionals to make better
decisions, be intuitive to use, be adaptable and in no way make their
jobs harder than they are already.
Unfortunately, simplistic IT solutions that gather large amounts of raw,
un-managed patient data, which can be matched with other data sources,
which are onerous to use, and which are easily accessible over the
internet can create far more insidious problems than they solve. In our
opinion the My Health Record falls into all these categories.
Furthermore, the gung-ho attitude of technology specialists and the
politically driven decision to make the My Health Record opt-out means
that patient trust, patient choice and patient care are being put at
The government should take a long hard look at the reality of the My
Health Record and realise that opt-out is not a good idea. It should
certainly not try and move the health data of the whole Australian
population into it such a poorly designed and risky system.
APF provides a more balanced view of the My Health Record System
than the government's promotional materials:
APF's MyHR Campaign Page
APF's Information Page on MyHR